Leveraging pediatric PROMIS item banks to assess physical functioning in children at risk for severe functional loss

Journal of Patient-Reported Outcomes

Table 3 Raw item scores and Upper Extremity and Mobility T-scores

	N	Mean (SD)	Median (25th–75th percentile)	Min, Max
Upper Extremity
T-score	57	21.4 (12.6)	16.9 (11.5, 22.5)	11.5, 52.5
Pull shirt over head	57	1.0 (1.6)	0 (0, 2)	0, 4
Put on shoes	57	0.8 (1.5)	0 (0, 0)	0, 4
Use key to unlock door	57	0.8 (1.6)	0 (0, 1)	0, 4
Zip up clothes	57	0.9 (1.6)	0 (0, 1)	0, 4
Put toothpaste on toothbrush	57	1.0 (1.6)	0 (0, 2)	0, 4
Put on clothes without help	57	0.9 (1.5)	0 (0, 1)	0, 4
Put on socks without help	57	0.8 (1.4)	0 (0, 2)	0, 4
Open clothing drawers	57	1.2 (1.7)	0 (0, 3)	0, 4
Hold a full cup	57	1.5 (1.8)	0 (0, 4)	0, 4
Use a mouse or touch pad ^a	56	1.8 (1.4)	3 (0, 3)	0, 3
Wash face with cloth ^b	57	0.6 (0.8)	0 (0, 1)	0, 2
Move hands or fingers ^a	57	1.8 (1.3)	2 (0, 3)	0, 3
Write with pen or pencil ^a	57	1.5 (1.4)	1 (0, 3)	0, 3
Mobility
T-score	57	22.0 (11.1)	16.7 (14.5, 29.7)	12.8, 54.7
Get up from the floor	57	0.9 (1.4)	0 (0, 2)	0, 4
Move legs	57	1.9 (1.6)	2 (0, 4)	0, 4
Stand up without help	57	1.2 (1.7)	0 (0, 3)	0, 4
Walk up stairs without holding on	57	0.5 (1.1)	0 (0, 0)	0, 4
Get into bed	56	1.0 (1.7)	0 (0, 2.5)	0, 4
Walk across room	57	1.2 (1.8)	0 (0, 4)	0, 4
Bend over to pick something up	57	0.9 (1.5)	0 (0, 2)	0, 4
Walk more than one block	57	0.6 (1.3)	0 (0, 0)	0, 4
Get up from regular toilet	57	1.1 (1.7)	0 (0, 3)	0, 4
Get down on knees without holding on	57	0.6 (1.3)	0 (0, 0)	0, 4
Turn head all the way to the side	56	2.2 (1.6)	3 (0, 4)	0, 4
Used a wheelchair ^c	56	1.2 (1.6)	0 (0, 2.5)	0, 4
Used a walker, cane, or crutches ^c	57	3.7 (0.9)	4 (4, 4)	0, 4

^aResponse levels “with a lot of trouble” and “not able to do” collapsed per PROMIS scoring algorithm
^bResponse levels “with some trouble,” “with a lot of trouble,” and “not able to do” collapsed per PROMIS scoring algorithm
^cNot used in Mobility T-score because item did not perform well