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Table 1 Baseline Demographic and Clinical Characteristics, n = 57

From: Leveraging pediatric PROMIS item banks to assess physical functioning in children at risk for severe functional loss

Child Characteristics
 Child age, mean (SD) 12.4 (6.2)
 Child female, n (%) 28 (49.1%)
 Race/ethnicity, n (%)
  White, non-Hispanic 42 (73.7%)
  Asian 6 (10.5%)
  Black, non-Hispanic 3 (5.3%)
  Hispanic/Latino 3 (5.3%)
  Unknown 3 (5.3%)
 Insurance, n (%)
  Private only 11 (19.3%)
  Public only 13 (22.8%)
  Private and public 33 (57.9%)
Disease Characteristics
 Diagnosis, n (%)
  Acquired injury 6 (10.5%)
  Anomalies (All) 4 (7.0%)
  Chronic lung disease 4 (7.0%)
  Dystrophies 12 (21.1%)
  SMA (Types I, II, III) 20 (35.1%)
  Other 11 (19.3%)
 Respiratory support, n (%)
  Artificial 3 (5.3%)
  Artificial + ventilator 23 (40.4%)
  Non-invasive 18 (31.6%)
  None 13 (22.8%)
Physician-rated clinical severity, median (25th–75th percentile) 6.0 (4.0–7.0)
Family Characteristics
 Parent female, n (%) 47 (82.5%)
 Parent age, mean (SD) 43.7 (7.8)
 Parent education, n (%)a  
   < High school 2 (3.7%)
  High school graduate 6 (11.1%)
  Some college 12 (22.2%)
   ≥ College graduate 34 (63.0%)
  1. aFour parents did not complete the education question
  2. SMA spinal muscular atrophy