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Table 4 Median PlexiQoL scores by known group factors

From: The PlexiQoL, a patient-reported outcome measure on quality of life in neurofibromatosis type 1-associated plexiform neurofibroma: translation, cultural adaptation and validation into the Dutch language for the Netherlands

 

n (40 total)

Median PlexiQoL score (IQR)

Self-reported general health

  

Poor & Fair

13

8.0 (4.0)

Good & Very Good

27

3.0 (4.0)

p-value (effect size)

 

0.002 (0.48)

Self-reported severity of PN

  

Mild & Moderate

32

4.0 (5.0)

Severe & Very Severe

8

9.5 (4.5)

p-value (effect size)

 

0.009 (0.42)

Treatment for PN

  

Yes

13

8.0 (8.5)

No

27

4.0 (5.0)

p-value (effect size)

 

0.073 (0.29)

Presence of other health problems

  

Yes

15

7.0 (8.0)

No

25

4.0 (5.5)

p-value (effect size)

 

0.099 (0.27)

Presentation of NF1

  

Generalised

35

5.0 (6.0)

Segmental

5

2.0 (3.5)

p-value (effect size)

 

0.083 (0.27)