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Table 2 Descriptive statistics, feasibility and reliability for the PlexiQoL and NHP. IQR = Inter-quartile range

From: The PlexiQoL, a patient-reported outcome measure on quality of life in neurofibromatosis type 1-associated plexiform neurofibroma: translation, cultural adaptation and validation into the Dutch language for the Netherlands

 

n

Median (IQR)

Min - Max

Scoring minimum (%)

Scoring maximum (%)

Cronbach’s α

PlexiQoL (1st

administration)

40

5.0 (2.0–8.0)

0–15.0

2 (5.0)

0

0.825

PlexiQoL (2nd administration)

39

4.0 (2.0–7.0)

0–15.0

3 (7.7)

0

0.844

NHP

      

Energy Scale

40

0.0 (0.0–66.7)

0–100

21 (52.5)

9 (22.5)

 

Pain Scale

40

12.5 (0.0–62.5)

0–100

16 (40.0)

3 (7.5)

 

Emotional Reactions

39

11.1 (0.0–33.3)

0–100

16 (41.0)

1 (2.6)

 

Sleep Scale

39

20.0 (0.0–40.0)

0–100

13 (33.3)

1 (2.6)

 

Social Isolation

40

0.0 (0.0–20.0)

0–100

24 (60.0)

1 (2.5)

 

Physical Mobility

40

0.0 (0.0–21.9)

0–87.5

25 (62.5)

1 (2.5)