Table 2 Background characteristics
Total n = 9769 | Crohn’s disease n = 4159 | Ulcerative colitis n = 5143 | IBD-U n = 467 | |
|---|---|---|---|---|
Sex | ||||
Male | 52.0% | 51.6% | 53.5% | 38.3% |
Female | 48.0% | 48.4% | 46.5% | 61.7% |
Age at diagnosis, mean (SD) | 31.28 (15.75) | 28.81 (14.91) | 32.35 (15.55) | 41.53 (19.45) |
Age at EQ-5D-5L registration, mean (SD) | 46.94 (17.28) | 46.27 (17.21) | 47.21 (17.09) | 50.02 (19.44) |
PGA | ||||
Inactive disease | 67.5% | 66.0% | 69.0% | 63.2% |
Mild activity | 19.4% | 20.7% | 18.0% | 22.7% |
Moderate activity | 10.1% | 10.0% | 10.2% | 10.1% |
Severe activity | 1.8% | 1.3% | 2.1% | 2.8% |
Not assessable | 1.2% | 1.9% | 0.6% | 1.3% |
SHS symptoms | ||||
No symptoms | 30.0% | 24.9% | 34.6% | 23.8% |
Mild symptoms | 32.6% | 34.3% | 31.6% | 27.2% |
Moderate symptoms | 20.3% | 23.2% | 17.8% | 23.1% |
Rather severe symptoms | 9.9% | 10.6% | 8.9% | 15.0% |
Severe symptoms | 5.2% | 5.1% | 5.2% | 7.3% |
Very severe symptoms | 1.9% | 1.9% | 2.0% | 3.6% |
SHS Interference in daily life (functional status) | ||||
Not at all | 33.4% | 28.5% | 37.3% | 34.0% |
To a low degree | 30.8% | 30.7% | 31.3% | 25.7% |
To a moderate degree | 17.4% | 19.9% | 15.5% | 16.3% |
To a fairly high degree | 9.1% | 10.4% | 7.9% | 11.1% |
To a high degree | 5.3% | 5.8% | 4.8% | 6.9% |
To a very high degree | 4.0% | 4.7% | 3.2% | 6.0% |
SHS Worry due to IBD | ||||
Not at all | 20.0% | 18.0% | 21.5% | 19.9% |
To a low degree | 34.2% | 34.6% | 34.4% | 27.8% |
To a moderate degree | 22.8% | 23.2% | 22.5% | 23.6% |
To a fairly high degree | 11.8% | 11.9% | 11.4% | 15.0% |
To a high degree | 6.9% | 7.7% | 6.1% | 7.3% |
To a very high degree | 4.4% | 4.7% | 4.0% | 6.4% |
SHS General well-being | ||||
Very good | 17.0% | 15.4% | 18.1% | 18.8% |
Good | 36.1% | 35.1% | 37.8% | 27.2% |
Fairly good | 28.3% | 29.1% | 27.7% | 28.5% |
Bad | 12.7% | 14.1% | 11.1% | 17.3% |
Very bad | 4.5% | 5.0% | 4.0% | 5.8% |
Terrible | 1.4% | 1.3% | 1.3% | 2.4% |
SI: Abdominal pain, na | 8132 | 3491 | 4298 | 343 |
None | 53.7% | 47.8% | 59.1% | 46.4% |
Mild | 28.9% | 31.1% | 26.9% | 31.2% |
Moderate | 13.0% | 15.4% | 10.8% | 15.5% |
Severe | 4.4% | 5.6% | 3.2% | 7.0% |
EQ-5D-5L index, mean (SD) | 0.79 (0.21) | 0.77 (0.22) | 0.80 (0.20) | 0.76 (0.21) |
EQ-5D-5L VAS, mean (SD) | 74.48 (19.48) | 73.33 (20.00) | 75.73 (18.85) | 70.56 (20.71) |