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Table 1 Performance descriptions for UDD symptoms

From: PRO-Angoff method for remote standard setting: establishing clinical thresholds for the upper digestive disease tool

 

Good

Moderate

Poor

Overall

Patients are performing as expected, and do not require an intervention or evaluation. Can continue to surveillance.

Patients not performing as expected. They may need medical attention over time. Patients would receive targeted education and counseling about behavior and diet followed by re-assessment.

Frequent or severe symptoms. Requires evaluation and may need an intervention

Dysphagia

• Able to eat along a continuum of no limitations to some difficulty with certain hard solid food (e.g., bread and meat)

• Infrequent symptoms

• Able to swallow all soft food

• Able to swallow all liquids

• No interference with daily life

• Difficulty with swallowing soft food

• Able to swallow all liquids

• Some interference with daily life

• Difficulty swallowing liquids or saliva

• Interferes or limits daily life

Heartburn

• No burning

• No symptoms when sleeping with the head elevated

• No symptoms with or without medication

• No interference with daily life

• Elevating the head of the bed helps but not completely

• Tolerable symptoms persist despite medication.

• Aware of the symptoms but easily tolerated

• Some interference with daily life

• Aspiration

• Constant symptoms

• Severe symptoms persist despite medication

• Severe burning symptoms when sleeping with head elevated

• Burning feeling in throat or behind breastbone that interferes with activities or daily life

• Interferes or limits daily life

Regurgitation

• No symptoms

• No food or liquid moving in the wrong direction

• No interference with daily life

• Occasional food or liquid washes up or returns to the mouth or throat

• With medication, symptoms may be relieved

• Lack of spontaneous regurgitation (identifiable triggers)

• Predictable symptoms

• Related to postural position (bending over, lying flat) or volume of food

• Some interference with daily life

• Choking from fluid or ingested food that comes back to the mouth or throat

• Daily occurrence

• Poorly tolerated spontaneous regurgitation without identifiable triggers

• Symptoms persist in spite of sitting upright or not eating before bed

• Interferes or limits daily life

Dumping - Generalized

• Experiences no or minor symptoms1

• No interference with daily life

• Experiences multiple minor symptoms1

• Some improvement with behavior changes2

• Some interference with daily life

• Experiences many minor symptoms or any major symptom1

• No improvement with behavior changes2

• Interferes or limits daily life

Dumping - GI

• No symptoms3

• No interference with daily life

• Several symptoms3

• Some improvement with behavior changes2

• Some interference with daily life

• Many symptoms3

• No improvement with behavior changes2

• Interferes or limits daily life

Pain

• Mild

• No interference with daily life

• Moderate

• Some interference with daily life

• Severe

• Interferes or limits daily life

Nausea

• No or little nausea

• No interference with daily life

• Occasional episodes of no consequence

• Responds to medication

• Some interference with daily life

• Frequent episodes

• Does not respond to medicine

• Interferes or limits daily life

Dyspnea

• No symptoms

• No interference with daily life

• With exercise or intermittent

• Some interference with daily life

• Interferes or limits daily activities

Aspiration

• No aspiration

• No noticeable aspiration

• No interference with daily life

• Aspiration present

• Symptoms are mild

• No interference with daily life

• Results in dyspnea or other more severe symptoms

• Interrupts or limits daily activities

  1. 1Dumping-Generalized symptoms include: Becoming pale, having a weak pulse or a very low blood pressure, fainting/loss of consciousness/ passing out, dizziness, weakness, exhaustion/desire to lie down due to weakness, sleepiness/drowsiness, palpitations, and headache). 2Behavior change includes avoiding sugar or carbohydrates, taking medication, or eating 5–6 meals a day instead of 3 meals a day. 3Dumping-GI symptoms include abdominal fullness/abnormal collection of gas in the abdomen, rumbling sound from your stomach or intestines, and diarrhea. Note. Each bullet should be interpreted as “or,” meaning that patients do not have to meet all conditions to be categorized for a certain performance category. If any one condition described in a bullet applies, then the patient is in that performance category.