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Table 5 Interviews topic guide

From: Content validity of the EQ-HWB and EQ-HWB-S in a sample of Italian patients, informal caregivers and members of the general public

Section

Content

1. Introduction and background questions

• Welcome

• Check if the information sheet has been read and participants agree with it

• Check if there are any questions on the consent form

• Outline of the interview and provide basic information on the topic and the project (i.e., read brief introductory text)

• Check permission to record and remind possibility to opt out at any time

• Probe for experience with health and/or social care measurement instruments and qualitative questionnaires in general

2. HRQoL and QoL questions

• Probes for meaning of health-related quality of life and quality of life

• Probes for important aspects for measuring a health and social care aspects

3. Think-aloud exercise

• Explain think-aloud exercise: “Before we start, I would like to ask you a question in order to practice the think-aloud technique.

“Try to visualize the place where you live, think about how many windows this place has. While counting the windows, tell me what you see and what you think.”

4. Explain next steps and Screen-share EQ-HWB questionnaire

• “Please now read the text of the EQ-HWB questionnaire that you have in front of you on the screen and comment aloud on anything that comes to mind as you read the questions. As you read, it is important that you say out loud if you think any of the questions asked contain important aspects of quality of life related to health and health care.”

– Think aloud exercise on EQ-HWB, experimental self-administered version, preceding 1.0 version

5. Explain ranking exercise

• “I would now ask you to rank five of the questions you have just answered, starting with the question you consider most relevant to measuring aspects of health and social care, and continuing in order to the least relevant, in your opinion.”

– Screen-share EQ-HWB-S questionnaire

– Think aloud exercise on EQ-HWB-S, experimental self-administered version, preceding 1.0 version

6. Verbal probing questions

• Probe for general opinion on the questionnaires

• Probe for how easy or difficult it is to answer the questionnaires

• Probe for any difficulties in understanding the questions

– [If yes] Probe for which questions were difficult to understand and why

• Probe for questions that could be removed from the questionnaires

• Probe for appropriateness of the short version of the questionnaire

7. Conclusion

• Probe for lack of reference to aspects of health or social care in these questionnaires, that would be considered important

• Probe for any other comments to share about anything that was discussed

• Thank for the participation.

  1. Note The table provided represents the English translation of the original interview topic guide, which was initially formulated in the Italian language