Table 2 Quantitative results from Round 1 (n = 37)
From: Identifying social outcomes of importance for childhood cancer survivors: an e-Delphi study
Item | Patient participants (n = 14) | Professional participants (n = 23) | All participants (n = 37) | Outcomes | ||||||||||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
General public | Childhood cancer survivors | |||||||||||||||||||||||||
Median | IQR | MADM | Median | IQR | MADM | Median | IQR | MADM | Median | IQR | MADM | |||||||||||||||
Education | ||||||||||||||||||||||||||
A. Receiving an education | 7 | 0.75 | 1.00 | 7 | 0 | 0.35 | 7 | 1 | 0.41 | 7 | 0 | 0.59 | Accepted | |||||||||||||
B. Complete school up to age 18 | 6 | 1.75 | 0.86 | 7 | 1 | 0.70 | 7 | 1 | 0.65 | 7 | 1 | 0.81 | Accepted | |||||||||||||
C. Complete vocational training | 5.5 | 1.75 | 1.07 | 7 | 1 | 0.48 | 7 | 1 | 0.76 | 6 | 1 | 0.84 | Accepted | |||||||||||||
D. Complete higher education | 4.5 | 2 | 1.36 | 5 | 2.5 | 1.10 | 5 | 2 | 0.97 | 5 | 3 | 1.19 | Re-presented | |||||||||||||
E. Good school attendance | 6.5 | 2.75 | 1.71 | 6 | 2 | 1.13 | 7 | 1 | 0.51 | 6 | 2 | 1.35 | Accepted | |||||||||||||
F. Good exam grades | 5 | 1.5 | 1.07 | 5 | 1 | 0.74 | 5 | 1 | 0.76 | 5 | 1 | 0.86 | Re-presented | |||||||||||||
G. Have enjoyed school | 6 | 3 | 1.79 | 6 | 1 | 0.87 | 5 | 2 | 1.24 | 6 | 2 | 1.22 | Accepted | |||||||||||||
H. Participated in extra-curricular activities | 6.5 | 3 | 1.78 | 6 | 1.5 | 1.00 | 5 | 2 | 1.08 | 6 | 3 | 1.30 | Accepted | |||||||||||||
Independence and autonomy | ||||||||||||||||||||||||||
I. Live independently | 6.5 | 1 | 0.71 | 7 | 1 | 0.57 | 7 | 1 | 0.68 | 7 | 1 | 0.62 | Accepted | |||||||||||||
J. Have autonomy | 7 | 0 | 0.29 | 7 | 0 | 0.17 | 7 | < 1 | 0.11 | 7 | 0 | 0.22 | Accepted | |||||||||||||
K. Undertake big responsibilities e.g. children | 6.5 | 1.75 | 0.93 | 6 | 2.5 | 1.22 | 6 | 2 | 1.08 | 6 | 2 | 1.11 | Accepted | |||||||||||||
Work and finances | ||||||||||||||||||||||||||
L. Financial stability | 7 | 1 | 0.50 | 7 | 1 | 0.39 | 7 | 1 | 0.46 | 7 | 1 | 0.43 | Accepted | |||||||||||||
M. Be able to save for luxuries | 5.5 | 1.75 | 1.00 | 5 | 1 | 0.74 | 5 | 1 | 0.76 | 5 | 2 | 0.84 | Re-presented | |||||||||||||
N. To have a job | 7 | 0.75 | 0.57 | 6 | 1 | 0.61 | 7 | 1 | 0.65 | 7 | 1 | 0.68 | Accepted | |||||||||||||
O. Well paid job | 7 | 1 | 1.00 | 6 | 1 | 0.57 | 6 | 1 | 0.76 | 6 | 1 | 0.84 | Accepted | |||||||||||||
P. Job satisfaction | 6 | 1.75 | 0.93 | 6 | 1 | 0.48 | 6 | 1 | 0.65 | 6 | 1 | 0.65 | Accepted | |||||||||||||
Q. Job that builds skills | 5 | 1 | 0.79 | 6 | 2 | 0.83 | 6 | 2 | 0.92 | 6 | 2 | 0.92 | Accepted | |||||||||||||
R. Be a homeowner | 4 | 2.75 | 1.43 | 4 | 1 | 0.83 | 4 | 1 | 1.08 | 4 | 1 | 1.05 | Re-presented | |||||||||||||
S. Doing better than others financially | 3.5 | 2 | 1.29 | 3 | 2 | 1.22 | 3 | 2 | 1.22 | 3 | 2 | 1.24 | Re-presented | |||||||||||||
Relationships | ||||||||||||||||||||||||||
T. Having relationships with others | 7 | 0 | 0.29 | 7 | 0.5 | 0.39 | 7 | 1 | 0.38 | 7 | 0 | 0.35 | Accepted | |||||||||||||
U. Good family relationships | 7 | 0 | 0.34 | 7 | 1 | 0.74 | 6 | 1 | 0.76 | 7 | 1 | 0.59 | Accepted | |||||||||||||
V. Good friendships | 7 | 1 | 0.86 | 7 | 1 | 0.61 | 6 | 1 | 0.78 | 7 | 1 | 0.70 | Accepted | |||||||||||||
W. Good romantic relationships | 5 | 2 | 1.29 | 5 | 1 | 0.65 | 5 | 1 | 0.89 | 5 | 1 | 0.89 | Re-presented | |||||||||||||
X. Good work relationships | 5.5 | 2 | 1.14 | 6 | 1.5 | 0.74 | 6 | 2 | 0.89 | 6 | 2 | 0.89 | Accepted | |||||||||||||
Y. Communicate with formal organisations e.g. for benefits | 4 | 1 | 1.07 | 5 | 2 | 1.04 | 5 | 2 | 1.19 | 5 | 2 | 1.16 | Re-presented | |||||||||||||
Z. To avoid social isolation | 7 | 1 | 0.50 | 7 | 1 | 0.43 | 7 | 1 | 0.65 | 7 | 1 | 0.46 | Accepted | |||||||||||||
Community life | ||||||||||||||||||||||||||
AA. Local community involvement | 4 | 2 | 1.21 | 5 | 2 | 1.01 | 4 | 1 | 1.22 | 5 | 2 | 1.22 | Re-presented | |||||||||||||
BB. Take part in community activities | 4 | 2.75 | 1.36 | 5 | 1.5 | 0.96 | 5 | 2 | 1.14 | 5 | 2 | 1.16 | Re-presented | |||||||||||||
CC. Support others e.g. charity work | 5 | 2.5 | 1.21 | 4 | 1 | 0.96 | 4 | 1 | 0.97 | 4 | 1 | 1.11 | Re-presented | |||||||||||||
DD. Being able to participate in a religious or spiritual community if desired | 4 | 4.75 | 2.07 | 5 | 3 | 1.21 | 5 | 3 | 1.68 | 5 | 3 | 1.65 | Re-presented | |||||||||||||
EE. Social identity | 4.5 | 3.75 | 1.93 | 5 | 1 | 1.00 | 5 | 2 | 1.32 | 5 | 2 | 1.35 | Re-presented | |||||||||||||
Lifestyle | ||||||||||||||||||||||||||
FF. Personal maintenance | 7 | 0 | 0.21 | 7 | 0.5 | 0.30 | 7 | 1 | 0.35 | 7 | 0 | 0.27 | Accepted | |||||||||||||
GG. Positive lifestyle choices e.g. exercise | 7 | 0.75 | 0.43 | 7 | 1 | 0.61 | 7 | 1 | 0.73 | 7 | 1 | 0.54 | Accepted | |||||||||||||
HH. Avoid risky health behaviours e.g. smoking | 7 | 0.75 | 0.50 | 7 | 1 | 0.78 | 6 | 2 | 0.92 | 7 | 1 | 0.68 | Accepted | |||||||||||||