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Table 2 Symptom concept elicitation—summary of responses and example quotes

From: A conceptual model for chronic hepatitis B and content validity of the Hepatitis B Quality of Life (HBQOL) instrument

Symptom

No. reporting (N = 24)

Example quotes

Fatigue: tired/sleepy

14

“Since I got the virus, I don’t have enough strength and I get really tired. Every time I want to lean on my hand or and I can’t do it because there’s not enough strength and it start hurting to bone. There’s no strength in my body and I’m putting too much pressure on me. Yeah. I get really tired so quickly and that’s so much.”

“It’s just I feel– I generally sometimes just feel tired. Like if I look at the computer screen for too long or I’m trying to work, my concentration goes down and I just feel like I want to sleep. But as I said, I’m not sure if it’s just because of the condition, or it’s just me.”

“There are times when I feel very tired, extremely tired, and for some unknown reason. And I think I’m not too sure if that has anything to do with what I got apart from me working hard a lot.”

Pain: abdominal

6

“I’ve got pains in my– on the right-hand side just below the rib cage where the liver is.”

“I do get pains in my liver, like shooting pains in my liver.”

Fatigue: lack of energy

4

“The main way I think is because I’m not feeling like last ten years, and now it’s coming to ten years, feeling I’m not as energetic like before.”

Fatigue: weakness

3

“It definitely makes you– physically makes you weak.”

Cognitive: foggy/difficulty concentrating

4

“In terms of work, it does– you can lose concentration, etc., but as I said, I’m not sure if that’s just one of the side effects of the medication and the condition.”

Weight change

3

“I would say, first six months, I found it very, very difficult. I lost lot of weight. I lost a significant of weight and there’s no strength in my body, and there was no I couldn’t eat. I could not even eat.”

Dizziness/feel faint

2

“I was palpitating. Most times, I have to lay down on my bed most times because, at that period in time, it affected my liver to a very good extent.”

Gastrointestinal: heartburn/indigestion

2

“It appears to take longer for me to digest stuff, so if I eat around a significant time […] when I was, I mean, years ago, I will be uncomfortable.”

Poor vision

2

“I think my eyesight is getting worse now because now the things I can– before more blurry, less blurry are becoming more blurry. So that’s something that’s really going to affect you more physically.”