A qualitative study to understand the Duchenne muscular dystrophy experience from the parent/patient perspective

Journal of Patient-Reported Outcomes

Table 1 Caregiver demographics (N = 42)*

Characteristic	%	Mean (SD)	Range
Age (years)		43.6 (8.7)	31–78
Relationship to child
Mother	87.8
Father	7.3
Grandmother	2.4
Grandfather	2.4
Ethnic origin
White	92.7
Hispanic/Latino	2.4
Native American/American Indian	2.4
Asian/Pacific Islander	2.4
Education level
Grade 12 or less	0.0
High school/GED	4.9
Some college	43.9
College graduate	19.5
Graduate degree	31.7
Marital status
Married	82.9
Divorced	9.8
Single	4.9
Widowed	2.4
Currently employed
Caregiver	95.1
Spouse	80.5
Has health insurance	63.4
Number of children with DMD cared for		1.1 (0.38)	1–3