Table 2 Resourcing and Reporting
Resourcing and reporting | n = 30 (%) |
|---|---|
Funding | |
Grant funding | 4 (13) |
Organisational funding | 9 (30) |
The individual specialty/clinical practice | 9 (30) |
Do not know | 6 (20) |
Other (philanthropic organisations, existing resources) | 2 (7) |
Oversight is provided by | |
Clinical governance unit within the organisation | 2 (7) |
Clinical governance unit within the organisation, patients e.g. consumer advocates or groups | 2 (7) |
Steering Committee or working group within the clinical practice/unit | 9 (30) |
Steering Committee or working group within the clinical practice/unit, clinical governance unit within the organisation | 3 (10) |
Steering Committee Or working group within the clinical practice/unit + various others* | 3 (10) |
Do not know | 7 (23) |
Other (patients, clinicians, or no oversight provided) | 4 (13) |
Coordinator/database manager managing the collection and use of PROMs | |
Yes | 8 (27) |
No | 17 (57) |
Do not know | 5 (17) |
PROM availability to clinicians in real-time to support clinical care | |
Yes | 20 (67) |
No | 8 (27) |
Do not know | 2 (7) |
Disciplines with access to PROMs and ability to use the information provided by it | |
Doctors, nurses, allied health | 13 (43) |
Doctors, nurses, allied health and other (data manager, aboriginal health workers and aboriginal liaison officers) | 3 (10) |
Doctors, Nurses | 2 (7) |
Doctors, nurses, allied health, patients and consumers | 2 (7) |
Allied health | 2 (7) |
Nurses | 2 (7) |
Do not know | 1 (3) |
Other (external staff e.g. survivorship team, various other) | 5 (17) |
Reporting to key stakeholders | |
Health services | 2 (7) |
Health services and various other# | 4 (13) |
Individual clinicians | 6 (20) |
Individual clinicians, Health services | 3 (10) |
Individual clinicians, Peer-reviewed publications and journals, conferences and forums | 2 (7) |
Individual clinicians and various other*# | 7 (23) |
No one | 2 (7) |
Do not know | 3 (10) |
Other (patients and consumers, funders and industry) | 1 (3) |
How is PROMs reported? | |
At individual level e.g., scores and changes in response | 9 (30) |
In aggregated form (e.g. annual reports, peer-reviewed publications) | 2 (7) |
At individual level and in aggregated form | 3 (10) |
At individual level, In aggregated form, and used for comparisons (e.g. patient results compared with cohort) | 5 (17) |
Does not report | 3 (10) |
Do not know | 4 (13) |
Various other** | 4 (13) |
Reporting frequency to key stakeholders | |
Annually | 4 (13) |
Monthly | 2 (7) |
Do not know | 16 (53) |
Other## | 8 (27) |