Table 1 PROMs Collection Characteristics
PROMs collection | n = 36 (%) |
|---|---|
Type of cancers | |
All cancer types | 21 (58) |
Lung | 4 11) |
Melanoma | 2 (6) |
Prostate | 3 (8) |
Multiple | 2 (6) |
Other* | 4 (11) |
Population | |
Adults only | 12 (33) |
Adults, older adults | 13 (36) |
Adolescents and young adults, adults, older adults | 8 (22) |
Other# | 3 (8) |
Disease stage | |
All stages | 31 (86) |
Early stage | 3 (8) |
Other (metastatic, survivorship) | 2 (6) |
Clinical setting | |
Acute hospital inpatient care | 2 (6) |
Acute hospital inpatient care and Outpatient care | 8 (22) |
Outpatient care | 23 (64) |
Other^ | 3 (8) |
Professional discipline | |
Allied health | 3 (8) |
Medical oncology | 3 (8) |
Medical oncology, nursing | 3 (8) |
Medical and radiation oncology | 3 (8) |
Medical oncology, radiation oncology, nursing | 3 (8) |
Medical and radiation oncology, nursing, allied health | 2 (6) |
Nursing | 9 (25) |
Radiation oncology | 2 (6) |
Not discipline specific | 3 (8) |
Other** | 5 (14) |
Number of years for PROMs use | |
< 2 | 5 (14) |
2—5 | 17 (47) |
6–10 | 6 (17) |
> 10 | 4 (11) |
Do not know | 4 (11) |
% of Patients with PROMs data collected/year | |
< 25% | 8 (22) |
25–50% | 5 (14) |
50–75% | 6 (17) |
> 75% | 11 (31) |
Do not know | 6 (17) |
Language | |
English | 33 (92) |
English, other (Chinese) | 3 (8) |
Reason(s) for PROMs collection | |
Facilitate communication between provider and patient + various other## | 27 (75) |
Screen for mental health issues + various other## | 5 (14) |
Various other## | 4 (11) |
Type of PROM used | |
Generic | 4 (11) |
Generic + Other*# | 18 (50) |
Disease/condition specific | 3 (8) |
Disease/condition specific + Other*# | 4 (11) |
Psychological | 2 (6) |
Psychological + Other*# | 2 (6) |
Tool developed ‘in house’/within the clinical practice | 2 (6) |
Not specified | 1 (3) |
Choice of PROMs informed by | |
Based on global standards only | 3 (8) |
Based on global standards + Other*^ | 7 (19) |
On recommendations of others + Other*^ | 8 (22) |
Practical/clinical utility of the instrument only | 3 (8) |
Practical/clinical utility of the instrument + Other*^ | 7 (19) |
Reliability and validity of the instrument based on published research | 2 (6) |
Do not know | 2 (6) |
Other*^ | 4 (11) |
How often is PROMs completed by a patient | |
At a single-time point | 6 (17) |
At multiple occasions other than daily | 14 (39) |
Relative to patient visit/clinical consult/clinician decision | 12 (33) |
Not specified | 4 (11) |
Mode of administration | |
Administered over the telephone + hard copy | 4 (11) |
Administered over the telephone ± other^^ | 3 (8) |
Hard copy given to the patient in clinic or practice only | 4 (11) |
Electronic in clinic or practice (completed on computer/tablet/smartphone) | 2 (6) |
Electronic with link sent via email + various other^^ | 14 (39) |
Other^^ | 5 (14) |
Not specified | 4 (11) |
Storage of PROMs data | |
On a purpose-built data collection platform e.g. REDCaP | 7 (19) |
Within the hospital system (e.g. via electronic medical records) | 14 (39) |
Within the hospital system (e.g. via electronic medical records) or on a purpose-built data collection platform e.g. REDCaP | 8 (22) |
Other (secure filing cabinet, clinical database) | 3 (8) |
Not specified | 4 (11) |