Table 3 CEP epilepsy-specific/targeted PROMs, these are also available as ePROMs

QOLIE-10 [15]

QoL

Epilepsy-targeted

10‐item weighted score from zero (no QoL) to one hundred (maximal QoL). Assesses seven central components, including seizure worry, emotional wellbeing, fatigue, cognition, medications, social function, and overall QoL

GASE [18]

Epilepsy severity

Epilepsy-specific

Single‐item 0–7 scale with higher numbers representing more severe epilepsy

GAD [19]

Epilepsy disability

Epilepsy-specific

Single‐item 0–7 scale with higher numbers representing more disabling epilepsy

NDDI-E [11]

Depression

Epilepsy-specific

6-item scale with scores that range between 0 (no depression symptoms) to 24 (‘always or often’ answer in response to all six questions)

Unclear if able to detect change over time [24]

LAEP [21]

Side effects of ASMs

Epilepsy-specific

19 symptoms on a 4-point Likert scale [21]. The global score is achieved through simple addition; hence, scores can range from 19 (no symptoms) to 76 (‘always or often a problem’ for all symptoms)